My team took care of a six year-old with terminal cancer until a week ago. The child died. We knew this would come, but until the death we could pretend death would bypass this family in that corner of our hearts where the unbelievable meets pleading to Someone somewhere to make it go away.
This child was (yes, the word now is “was”) so beautiful and precocious. One set of grandparents already gone, the child wrote a letter last year to them saying how much they were looking forward to meeting them in heaven long before anyone knew what was growing deep inside. I find such comfort in that letter–I pray the family does as well–and have a vision of the child being welcomed into Love’s embrace with the longed for grandparents waiting to take this child by the hand.
I cried when I heard last Wednesday of the child’s death. The death felt sudden somehow. I saw the look of shock, grief, dismay, concern, pain and resolute understanding on the faces of my team. This is not to say we did not believe the child did not have terminal cancer. We did. This is not to say we believed the child would be given a miracle. We did not. We are just human beings who despise seeing children die, and still just do not want it to be the case. We are also human beings who know that children do die, for we have been in this place before.
As many times as I have been there, I do not like going back. Inconsolable. Yes, that is the best word to describe the terrible pain. I feel it in my gut as a caregiver. What can I say? What can I do? I can only be. I can only love. I can only care. I can only remember.
When I was a Chaplain in North Carolina, I saw so many children die I lost count of their faces. Some still come back to me–even now as I write this–and I pray for their parents and loved ones who continue on without seeing them grow up. I count the seconds, minutes, hours, days, weeks, months, years they were with us and name it “blessing” even as their deaths continue to be “loss.”
Let me call out those I do remember:
- The baby in the bucket.
- The baby who waited two weeks for her Father to be found in Afghanistan and brought home before she died.
- The teens–two from one family, one from their best friends’ family–who died in that wreck.
- The boy who got drunk to celebrate getting out of rehab and getting a new car. Your father taught me an important lesson about hope in the face of destruction: We pray for a miracle because it is all we have, even as we are so angry with God (or at least our view of a God in control of every aspect of our lives) for not stopping the terrible thing from happening.
- The twins of the one I cared about. May your adopted child continue to bring you blessings and the trees flourish in their honor.
- The baby with the perfect old lady hands.
- The little boy who I prayed over in the operating room.
- The teen with Cystic Fibrosis.
- The girl whose mother was an inmate.
- The girl whose mother donated her organs after she was stuck down at the bus-stop.
- The boy whose parents just could not donate; they were too grief stricken.
- The girl whose body was in limbo as her brain held onto only the tiniest expressions of life.
- The baby the mother beat.
- The children set on fire by their mother’s boyfriend.
- The children tossed from the van on the family trip from Virginia.
- The children tossed from the van on the way home from church.
- The baby my flight crew brought in and just melted when he died.
- The baby killed by her father.
- The boy who knew he was dying for so long, but his parents never wanted to talk about it.
- The baby with no arms or legs. I will never forget escorting your wailing family out of the NICU.
- The baby I bathed before putting in the box to be buried at home given how poor your Mama was.
- The ones I have forgotten, may God remember for me.
- The child who died a little past midnight on my Team, Wednesday, March 21, 2007.
Sweet Honey In the Rock sings “We Are” on their Sacred Journeys CD. Here are the words in honor of all the children I tended and their loved ones, and for all who have lost a child and all the dreams that go with them into Love’s tender embrace:
For each child that’s born,
a morning star rises
and sings to the universe
who we are
We are our grandmothers’ prayers
We are our grandfathers’ dreamings
We are the breath of the ancestors
We are the spirit of God
We are
Mothers of courage
Father of time
Daughters of dust
the sons of great visions
Sisters of mercy
Brothers of love
Lovers of life
Builders of nations
Seekers of truth
Keepers of faith
Makers of peace
Wisdom of ages
We are one.



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