Part II: Love At First Sight

Sometimes I fall in-love very easily and shamelessly with my patients. I do not mean to speak of romantic love, but instead of how a special spark will exist and you just love instantly as a result. I recognize how common threads from my life and theirs act as catalysts, but sometimes I am at a total loss for why I feel so compelled by them and their stories, loved ones, life, illness, etc. I had two different “Jacquelines” this year, so I think we can easily trace why they were special to me right from the start! My nurse Wendy and I fell in-love instantly with “Yoda” and for no other reason than the man was a complete gentleman. I also think the way he would speak of his wife and how he longed to see her again touched me deeply–both in my understanding of how death does not end love and in my own longings to have a man feel that way about me. And then there is my patient I always referred to as “My Love.”

Whenever I would come into her home I would say, “Hello My Love, tell me about you today.” If I said, “How are you?” she would always reply, “How the hell do you think I am?” I always met that with a snappy, “Shitty for sure, but better now that I am here!?” (smirk included free of charge) She would snarl and laugh all at the same time! My Love suffered with COPD and with the horrible box of living with a terminal disease. Dis-ease all around her, I felt from the very beginning of our time together in September 2006 that she suffered from Complicated Mourning. The DSM IV (the psychological diagnostic Bible) basically says one suffers from Complicated Mourning when after a year from the initial time of the loss one still experiences the loss in the same way as when the loss first occurred. In other words, one never moves beyond the initial grief reaction. Imagine if you learned of the death of your closest friend…hold that thought, feeling, body trauma for just a moment. Now imagine never letting that feeling morph and heal, but instead staying exactly the same always. Complicated Mourning occurs most commonly after sudden traumatic losses, including but not limited to: homicides, death of a child, multiple losses or concurrent losses, and/or suicide. In the case of My Love, the person she saw herself to be died when she entered hospice in April of 2005, and she never could fully grieve the myriad of her life changes or heal into the person who rose from those ashes.

I can remember feeling intimidated walking up to her large home for the first time…what turned out to be a very pretty prison of her own making. I greeted the most beautiful woman. In her mid-sixties, she could have passed for being in her forties but for her hands, which belonged to a woman thirty years her senior. Her hands told the story of her weakened lungs, weakened resolve, weakened resilience. I always notice people’s hands–even as a child I would compare my own to my Mother’s and Grandmother’s all through the church services. Her hands continued to tell her story in that they were most often clenched. She would sit in her recliner, leaning back to her left with her left hand tight and her right arm locked out straight to her seat. She would wag her right index finger at you to make a point, but the rest of her hand stayed firm. Her hands never lied about how desperately she was holding on, and they never lied about how desperately she was living.

I think of my “Patient Zero” as a mother from when I served as a Youth Minister in North Carolina. She and her husband–both lawyers–engaged in one of the bloodiest divorces I ever witnessed, and I only saw the aftermath. She also had Breast Cancer with mets to her liver. I visited her at Duke after a surgery to help with the spread of the cancer in her liver. Her goal simple: Live until her 10 year-old turned 18. God forbid her former husband raise her or interact with her more than the bare minimum the court ordered! She too held on tightly. She told me as I stood by her bedside following the surgery how she prayed God would help her to let go of holding on with such vigor and desperation. She did not pray for her whole hand to unfurl, but instead she asked God to come and loosen just the tiny tip of her pinkie finger so she might breathe a bit easier. With this image in mind, I often find myself praying the very same thing–for myself and for my patients.

When I left My Love’s home after our first visit, I leaned in close to her and said, “My prayer for you is that you will have just one minute of peace each day. I am not naive. I do not think a feeling of peace will just overtake you out of nowhere. But I do believe one extra minute per day is possible. This is my prayer.” She gripped my hand with her right hand and said, “You understand. Thank you. Yes; pray for that for me.”

See My Love was so terribly stuck. She was near death when she came onto hospice in 2005, but after a drug allergy diagnosis and correction she rallied. When the old version of herself died, so did all her dreams of  this being something she could and would beat. Imagine a plane circling the airport–which in this case represented death–day-after-day but never flying anywhere either. She was terrified of getting sick, and subsequently her precious grandchildren represented the kiss of death. She also missed them terribly and longed to hold them, play with them, and witness the intricacies of their growing up. This is just one example of the ways she held onto her life but never really lived. My Love was so terribly stuck.

My Love never could consciously release herself from her ritualistic hovering over death. A fall a few months ago, and a series of events began to unravel her desperate hold onto a life she hated and hated to have any change to. At the beginning of December her husband moved her to an inpatient facility when her death became more imminent. I visited her there often, and would look painfully upon her still clenched hands. After her death this past Thursday, I sat in the same Family Room where she lived in isolation for these last two and a half years…a room without her chair, hospital bed, commode, mirror, eye brow pencil, pashmina, blush, and oxygen. A room without her. Her family looked at me excitedly and her daughter related something they just had to tell me: “Her hands were at peace the last two days. We noticed it and thought we had to tell you because you would be so glad to know she stopped holding them so tightly. She died with her hands open and at peace.”

Why her? Why did I fall in-love with her? She was a bright, enthusiastic, funny, creative, sarcastic, honest, lonely, hurting, broken woman. I do not know what to say beyond that I loved her deeply because I did. She never “earned” my love…in fact she tried it more than once. I just know I loved her right exactly where she was–clenched hands and all. Her husband asked me to officiate at her funeral. He knows the day of her funeral is also my last day with hospice, so he called it “poetic justice” that my last responsibility for hospice is her funeral. I fully agree, but even if I had already left I still would have done it for her…anything for My Love.