May 2008

Many of you are familiar with Dr. Randy Pauch’s Last Lecture: Achieving Your Childhood Dreams. For those of you who have not seen this amazing lecture, informed by his journey with terminal pancreatic cancer, here is the YouTube video of the lecture:

In his book, he ends it with a request for information from those of us whose own parents died when we were young. My mother suggested I write to him; the letter follows. I do not expect him to read it, for I am sure he is deluged with mail of all kinds these days. I did, however, think the letter was a good summation of my own thinking about how to help children who face the death of a parent.

Dear Dr. Pausch,

I am writing to you because I understand you seek first-hand reflections from those of us who lost our father at a young age.  I was six when Daddy died from a MI following a year of being in the hospital off and on due to viral myocarditis.  I can remember my mother coming and taking me on Fridays to see him at lunchtime.  We would stand outside of the ICU in the grass, and the nurse would open the window so I could see Daddy and talk to him.  Thankfully, the ICU was on the first floor!  In 1977, children were not allowed into the ICU proper, but my mother wanted me to see Daddy with my own eyes.  She is a nurse, which I think helped inform her understanding differently than the prevailing wisdom of the time.  Now, unless there was an issue of infection, we would never keep a child out of the ICU.

You may wonder how it is that I know this fact.  I grew up to become an ordained minister in the United Church of Christ and have worked as both a hospital and hospice chaplain.  I did my Residency in Clinical Pastoral Education at RUMC in conjunction with the JMSHCC.  My clinical rotation was as the first chaplain for their stand alone Trauma Unit.  Prior to that, I worked at the UNCH and with CDS, where I helped families facing the brain death of a loved one.  In January, I left Hospice and became the Support Services Director for the CCA.  I offer to you my credentials for two reasons: 1) I want you to know I understand grief and bereavement issues as both a mourner and as professional; and 2) I want to spark your imagination about the potential to use the deep shit of one’s life for good–even if that shit happens as a young child.

Daddy’s death taught me some very fragile, yet important lessons, at six.  Freud would call it my “primary narcissistic trauma.”  I call it the moment my DNA changed.  Whoever I might have been without his death at that moment, ceased to exist.  The only potential future before me included the loss of my father.  I would travel without his presence.  Period.  Every moment of the time of being told about his death is real to me still, but so is Daddy.  In today’s grief lingo we speak of “continuing bonds.”  Even death does not end our relationships with those most dear to us.  One need not believe in an afterlife  in order for these bonds to exist. (I dream of one, but I do not know one exists.) The way I put it to the families I care for is this: The love in our hearts keeps them alive within us.  Nothing can separate us from that love.  It never dies as long as we remember.

Remembering is the greatest gift.  I know your children are young, but I remember more of being 0-6 than any of my peers.  Why?  My mother was keen to ask me to continually retell my Daddy stories.  Even as it broke her heart, she listened and cajoled.  I am 37 now, but I still remember being on a National Airlines flight at 3 months of age.  I cannot, however, remember what I did last Friday night!  Why?  My theory is that my young memories became reinforced by the storytelling so much they became marked within my mind and saved as permanent not temporary.  When I was six, it was not a big deal to think back two years and remember playing with Daddy at the park.  Now, I would be hard pressed.  So, my first thought is your wife needs to be committed–even when she cannot breathe or hardly get out of bed–to ask your children to tell her stories about you.  The whole extended family would also need to be encouraged in this regard.

Secondly, leave for your children as many personalized letters and videos, etc. as you can and make them age appropriate through college and young adulthood.  I know this will be the most devastating thing, but I suspect you have already begun this process.  My father did not do this at all.  In fact, I have a rock in my living room with his penciled “Jack” on it as my only reminder of his handwriting.  (He sent the rock to my Grandmother as a joke because our dog kept bringing her rocks as tokens of love when she visited.)  I often ask Mother if he would be proud of me…what he would think of my work…if he loved me?  Although in my heart I believe these things to be true, how much the better to have them before me.  You come across to me as a man of good humor and realism–don’t forget that in these remembrances.  Your children will look to them to decipher who you are, and who they are that is you.  They will be both mirror and guide, so set reasonable expectations for their life coupled with a humor-filled dose of “Daddy was a human being, after all.”  Losing a parent at a young age immortalizes the parent–Daddy died and climbed onto a pedestal in short order.  Some of this is inevitable, but I also think you can show your tender underbelly.

So many parents I have worked with as they are dying want to protect their children from the inevitability of the pain of their loss.  They want to delay it as much as they can.  This is not helpful, because then the death appears as a trauma.  When someone is sick and dies–as in your case and in my own story–warning shots can go across the bow so as to make the death (loss) expected and not a surprise.  Children over the age of four can usually handle some form of warning shots, especially reinforcing that you are indeed sick.  Depending on emotional maturity, the ages of four to six may be able to handle the possibility of death.  Over six, in my opinion they need to know death is not only a possibility, but also a likelihood.  I often use the analogy of giving your child Motrin for fever: You never give the whole bottle, but a dose at a time helps them to heal.  In the same way, I suggest dosing out these warning shots.

Lastly, I urge you to write letters to your children for when they are 25.  In these letters you need to say one very important thing: Goodbye.  I wish I had been able to say that to Daddy.  My father was healing at the time of his death, and as a result, we went on a little vacation before he was to go back to work July 5th.  He died on that trip the morning of June 28, and so I went from seeing him leave with Mother for a few private days one morning (I stayed at my Grandmother’s.), to having Mother tell me of his death the next.  Most of the 400 deaths plus I have attended afforded some opportunity for the family to say goodbye, which our death rituals do as well.  But the opportunity for the one dying to say it rarely is taken, if even there is the time and space for it.  “Goodbye” is powerful and healing.

You know, there really is no “right” way to do things here.  This totally sucks!  At the same time, there are things I learned as a child that helped me become a tender and intelligent woman and chaplain.  Truth and kindness go a long way–for yourself and for others.  I do not know what will happen when you die, for you or for them.  What I do know is that healing, which is coming to that place where a loss is integrated into our lives, and a rich and full life is possible with great and terrible loss.  Your death will change their future, their DNA.  The loss is that profound.  And with that change great potential will open for them to use that loss to make their lives more, not less.  This will be their choice, just as it was mine.  May the teaching and loving you do now and the legacy you leave them help inform this choice.

In kindness and solidarity,
Jacqueline Hope Derby

Food and I dance delicately with one another. I work hard to eat healthy, but I also know the times when the planet tilts swiftly beneath me and my emotions cry out for comfort food. My Deserted Island Menu of three items has remained steady throughout the years: broccoli, mac & cheese, and mint chip ice cream. I still eat broccoli almost everyday, but I limit the other two to the “rarely” column. Long gone are the days where cheese is the centerpiece and not a condiment. Now, eating mint chip makes me take a good long look at my emotions and what stress I seek to avoid. Yet, a girl’s gotta eat!

I work with someone who can (miraculously) eat egg whites and an apple for breakfast, a frozen piece of chicken with salsa and frozen brussel sprouts for lunch, and NEVER complain (she does heat the frozen parts). Not me. I can eat the same yummy food day-after-day, but it needs to be homemade. I prefer not to eat Chicken Catchatorie with a side dish of regret, so I work to limit fat, sugar, white flour, and eating out. However, I do leave room for small squares of dark chocolate or Whip ‘N Dip, where a girl can get Light Cream to satisfy the ice cream craving without a shred of guilt. Never being a big fan of meat really comes in handy when one wants to eat healthy. I used to be a vegetarian, and I am back to chicken as my only meat source again. I work out with a trainer these days–”Cupcake” (so named because he has replaced the cupcakes in my life)–so I REALLY do not want to eat something to undo the hard work I do whilst I pay him to torture me for two hours a week!

So, a girl’s gotta eat and gotta eat good and gotta eat good and healthy!

Fortunately, I love to cook. I love knowing I made something not only scrumptious but also good for me and those I feed. (You know who you are!) I love how food binds us together. Conversation flows more easily around a big bowl of chili. Love is folded into freshly baked bread. Illness is soothed. Fear is quieted. Connections made. I think this is why Jesus (and any good Jewish mother!) centered so much of his ministry around the table. You cannot break bread with an enemy without the enemy being transformed into a companion, if not friend. Family is created at the dining room table. Wounds healed.

Here are two of my own favourite recipes–one is my own, the other an adaptation–to make some truly yummy comfort food and food that is good for you:

Chicken Tortilla Soup

You are going to be a bit scared when first reading this, but once you make it you will see how simple it is. I promise. I felt the same way the first time I read Heidi’s site with the pizza dough recipe, but after doing it once I don’t even need to look at it again unless I need a reminder of portion size. That simple once you know it, but daunting the first read. Keep that in mind here too:

• 2 whole chicken breasts, boneless and skinless, split and cleaned up with no fat.
• 2 yellow onions
• 2 green peppers
• bunch of cilantro, trimming off lower half of the stem end, and then cutting the group in half, to reserve the top part for the soup itself
• fresh garlic cloves (Note: I like at least 10 in the soup, and another 6 or so for the chicken.)
• sea salt or kosher salt
• pepper corns
• 2 T oregano
• fresh ripe red tomatoes (Note: I use at least 3 large fresh tomatoes, but more depending on what is in season and looks good. You can make this with only fresh tomatoes, or you can use only canned. This is really a seasonal issue. I prefer Roma tomatoes, but they did not look spectacular at the store this last go around. Instead I used 3 beautiful garden tomatoes with 26 oz of organic strained tomatoes.)
• 26 - 52 oz chopped tomatoes, if needed
• 1-2 yellow, orange or red bell peppers
• 4-8 jalapeños, depending on preferred hotness
• 2 Serrano peppers
• 4 Cups of chicken stock (Note: I prefer Pacific Organic Chicken Broth to all other store bought brands, although I find using the chicken stock from the chicken will work great too.)
• 1 T cornstarch
• 2 limes

The Chicken: To make the most delicious chicken that shreds the moment you touch it and is succulent in this soup…or enchiladas, tacos, etc. you must endure a three hour process. That is the bad news. The good news? This is less than 15 minutes of prep and a 5 minute finish. (Good soup making and laundry go hand-in-hand.) I try and always do four whole breasts, (double the above amount) and freeze the other half at the end, without shredding.

1. Put the chicken in a large soup pot (the same one you will use later) with the lower half of the trimmed cilantro, one roughly chopped onion and one green pepper, smashed garlic cloves, the oregano, some sea salt and a good tablespoon of peppercorns.
2. Add enough water to cover with a half inch of water, and simmer over medium low heat for three hours. Add more water if needed.
3. Take out the chicken, to be shredded for the soup.
4. Strain liquid through a sieve lined with a coffee filter, which will keep out the oregano from the broth.
5. Reserve broth.

The Soup: This recipe started when I made some enchiladas in Chicago with fresh homemade salsa to accompany it. I had the left overs in my kitchen and thought about how much I love Tortilla Soup. In short, you make homemade salsa, but just puree it instead of the rough chop homemade salsa usually requires.

1. Place in two batches the tomatoes, peppers, garlic, onion and cilantro into the bowl of your food processor and puree. (Note: You will need to split the tomatoes over both batches because the water content in them helps keep the food processor working smoothly.)
2. Add to clean soup pot and bring to a boil. Lower heat.
3. Add shredded chicken and broth. Simmer until it turns a deep brownish red.
4. Add cornstarch to 1/4 C cool water, and put slurry into soup.
5. Finish with fresh lime juice and sea salt to taste.
6. Makes 8 servings

You may wonder where the tortillas are. I skip them in order to have the corn muffins below. My favourite store bought brand is FoodShouldTasteGood’s Multi-grain tortilla chip/cracker things. Simply perfect!
Here is the nutritional information, based on the above ingredients put into My Food Diary’s recipe builder:

Corn Muffins

If you love to cook, Heidi Swanson’s amazing site 101 Cookbooks is for you. Everything I try from her recipe trove proves perfect. The pizza dough IS the best, and how I found her site to begin with. I made the Cottage Cheese Muffins, from Rose Elliot, twice now with great success the second go-around by eliminating the salt. (The first batch were too salty given the saltiness of the sun-dried tomatoes.) I use almond flour (Bob’s Red Mill) in lieu of doing my own almonds, which give these muffins a texture not unlike a good corn muffin. Being Southern, I love a good sweet cornbread reminiscent of Jiffy. I thought I could adapt the Cottage Cheese Muffins to be yummy high protein, lower carb versions of my favourite corn muffins. The results were AMAZING!

• 1 C low fat cottage cheese
• 4 whole eggs, or equivalent egg substitute
• 2 T blue agave (in lieu of sugar for those diabetic, like me–can be found at Whole Foods)
• 1 T canola oil
• 1/2 C cornmeal
• 1/4 C soy flour
• 1/4 almond flour
• 1 t sea salt
• 1 t baking powder
• 1/4 t cayenne pepper (more if you like)
• 2 ears of fresh corn cut right off the ear and uncooked

1. Preheat oven to 400 degrees.
2. Line muffin tin with cupcake liners or spray with oil and dust with flour.
3. Whisk together all of the wet ingredients. (I find the whisking helps the cottage cheese to become incorporated.)
4. Then add the dry ingredients until fully incorporated. (You could stir the dry ingredients first, but I just go for it!)
5. Fold in the corn.
6. Fill cups and bake for 25-30 minutes until golden brown. (I added a tablespoon of lower fat cheddar to the tops for the last half of the baking. Amazing!)
7. Makes 8 servings.

Here is the nutritional info if made with egg substitute:

I find myself on a precipice. The mountain climbed…the sorrow of a broken childhood, of a broken child behind me. The battle scars emblazon my side, my hands, my feet. I carried the first most horrid of crosses. I survived the plunge of the sword, for John tried to take my very life away by stealing my spirit, my youth, my hope. I did not die. I would not die.

I waited a terribly long time to open to the nakedness love and intimacy require. I ventured first with those safe, manageable, less. I thought I met my equal; I was wrong. In choosing to look away when he lied, I pretended he would not lie to me. He did. I almost died, and almost spent the wellspring of my hope on the despair I became enveloped in when he lied and left. I did not die. I would not die.

Hope; she is my constant friend. She stands with me on this ledge between the past and the future, so uncertain but always imagined. I see us standing against the wind, which whips through our hair. We laugh. We cry. We dream the most amazing of dreams for my life. The sun blazes and the sky dances with colour as we put to bed the despair of this last season of my life. How strange I find it that the setting sun seems to fall so much faster than the heat of the noonday sun. Why?

So my dear love, here I come. Are you ready?

Let us be clear about what I need from you, for I am completely clear about what I will offer you. I need fusion. I do not pine for fireworks shattering the sky with a million stars here for only a moment. I do not desire the rapid fast burn of a nuclear love. I survived one of those, and the apocalypse devastates everyone in its path. No. Give me fusion. Give me two whole people coming together creating a fire between them impossible alone. Leave the divided spirit, the divided desires, the divided will, the divided atom behind. Join. Merge. Intertwine with me. Let us be more than we could have ever imagined on our own. Leave the ashes of simple fireworks to fall back to the earth. Let us be a galaxy all our own.

I will give you creativity. Nothing will be boring. I will always find new ways to laugh and play. I will give you integrity. I will tell you the truth. I will be kind. I will be generous. (Shall we compete to see who can be more so?) I will embrace you as you are, and dream your dreams of all you can do and create for this world. I will give to others. I will not forget you. I will write my name on your heart. I will cheer you on towards your prize. I will pray for kindness and doors to open to you. I will place a soothing balm on your wounds when the doors crash into your broken body. I may not pick you up–for you will have to do that for yourself–but I will lay beside you and kiss you sweetly until you have the strength to rise. I will question. I will fold the laundry. I will be my own person. I will have my own life and friends. I will be good to your family and friends. I will forgive. I will believe in you no matter what they say. I will trust you. I will honor the man you are. I will value your gifts and never think you a pansy. I will fight for you, and at times with you. I will apologize. I will seek your forgiveness. I will deserve it. I will love you. I will fuck you. I will lay you down. I will tenderly caress you. I will make love to you and discover your body anew even as the years pass us by. Every wrinkle, every laugh line, every sag, every cell will be counted with affection. I will embrace your changes. You will be mine, and I will be yours.

Are you ready? Here I come.

Please let me into your secret places. Let me see you. Let me love only you. I know we have it in us to do this together and to create something more than we can possibly imagine.

I stand on the precipice with Hope beside me.

Acknowledgment: The inspiration for this piece comes from Sarah McLachlan’s song “Answer.”

PHOTO CREDIT: Philip Brooker

Mother has a favourite Cynthia Clawson song that she is unable to find anywhere. She only remembers one line and sings it regularly, “I am on a journey Lord.” Over and over again I will hear her lilting and crackled voice sing this line to me. She longs to hear the song again. Where does the longing come from? Does she feel like she is perpetually on a journey? Is she clinging to God when the going is hard and tough? Is she asking for understanding as she continues to grow (and grow up), even at 70? Is she letting God know she loves the process more than the destination? Is she staking her claim?

I do not know what it means to mother–this song, this line–but I do understand what it means to stake a claim on the journey of life. I feel I am there too. Life is change, but it often comes with pain. In order to grow up or morph, we have to tear down the old and bring in the new. I find myself in the tearing down phase right now, which feels amazing and hard and painful and hopeful–all at once! I feel pulled in, introspective, jumbled, lost, searching. Not unlike the butterfly in its pupal stage, I find myself a pupil at the feet of those who are teaching me now. Some teach me through interaction; others through reading. I am also being taught by my memories. “I am sitting here wanting memories to teach me; to see the beauty in the world through my own eyes,” is how the group Sweet Honey in the Rock put it in one of their songs.

I seek transformation and transcendence. I seek love unlike I have ever known it before. This love flows to me, in me, around me, beyond me. I do not want to be the same Jacqueline–not because I do not see the beauty of my being and life to this point, but because I see it and its innate potential for so much more. I see how I step away from extraordinary for good enough. I do not seek perfection. However, I do want more from myself than to simply get the deep connections, I also want to put the plug in the wall and let the juice flow! I see all the time I invest into understanding, but not into the actual living out of my dreams due to the cesspool of fear left behind by those who broke my heart and my own frail ways of coping at times. I keep unwinding the spool of thread, but I feel I put it back on the shelf neat and tidy. I live to the fear of it all falling apart, coming undone, getting painful and messy too much of the time. I need to hurl the ball of string off the bow as a streamer of joy in my life!

I find myself in the stillness of my own quiet temple, yet with an ever present messy messy mind. I have such a messy mind! I unwind the spool, and cringe at how I need to let it go free. The only reprieve or solace I find is in the quiet. I do not watch television. I do not listen to music. I hate talking on the phone. I avoid friends and family. I play quietly with Emma. I delay at answering personal emails. Not completely–for when I need them, I draw them all close, but for the most part I find these days rather isolated. I find I need so much time to think and to heal, for this is my ultimate treasure now.

In the stillness I find healing. Not a panacea, where everything has been righted and the planets aligned again. No. Healing where the tilt exists, but I know how to lean into it now and not lose my balance healing. For some reason, when I received this photograph my friend sent me from his time in the woods of France I felt I was IN the photograph. No, not there physically, but in my heart. In the stillness of the stream. In the stories hidden beneath its loam. In the fold of the branches. In the seeking of the leaves for a bit of light. In whisper of woods. In the heartbeat of nature. In the strength of the root. In pride of the tree trunks. I am in the song, in the breath, in the scurry, in the ache of life right now. I am in that place of chaos and clarity. I am in love–with my own heart, with life, with others.

I am on a journey Lord…

PHOTO CREDIT: Philip Brooker